Jewish Baby Boy Needs Forever Family

Posted by:  Michele Fried

Posted on:  12/16/04

Adoption STAR is seeking a family for a baby boy with special needs.  If you can be of help to us in identifying a family, it would be greatly appreciated.  Only home study ready Jewish families will be considered at this time. 


Baby boy born 11/26/04 in NY State.


Caucasian Jewish married couple, both 28 years old. This was their first pregnancy - planned. They want a Jewish family – Reform, Conservative or Orthodox.


Baby boy has Fraser Syndrome (not confirmed, should be confirmed shortly but doctors feel sure) - also known as Meyer-Schwickerath's syndrome, or Fraser-François syndrome, or Ullrich-Feichtiger syndrome.


Birth couple have researched this extensively and feel they cannot parent this child. He is blind - born with no eyeballs and need to have orbits placed to keep his eye sockets growing with the rest of his head. He has a bilateral cleft lip and palate. Birth mother feels bad for the baby and wants him to be with a family where he is wanted for who he is. Birth father is very supportive and feels this is best. As of yesterday the baby weighed 5443 grams. He will need surgery for cleft lip and palate and for his eyes. He also requires his anus to be dilated daily - something simple that parents can do and something that he should not need long-term.


Baby is being transferred tomorrow to a facility until he can be adopted. Birth couple would like him to be adopted ASAP. They would like an open adoption with pictures and letters (or email), visit at time of placement, and possibly phone conversations.


This couple would like to view adoptive parent profiles immediately.  Home studies and profiles may be sent to Adoption STAR at the address below.


Here is brief information on this syndrome:


Fraser Syndrome is a rare genetic disorder characterized by partial webbing of the fingers and/or toes (partial syndactyly), kidney (renal) abnormalities, genital malformations, and/or, in some cases, complete fusion of the eyelids (cryptophthalmos) that may be associated with malformation of the eyes, causing blindness. In infants with Fraser Syndrome, renal malformations may include improper development (dysplasia), underdevelopment (hypoplasia), or absence of one or both kidneys (unilateral or bilateral renal agenesis). In affected males, one or both testes may fail to descend into the scrotum (cryptorchidism), the urinary opening (meatus) may be abnormally placed on the underside of the penis (hypospadias), and/or the penis may be abnormally small (micropenis). Infants and children with Fraser Syndrome may also have additional abnormalities including malformations of the middle and outer ear that may result in hearing impairment. Fraser Syndrome is inherited as an autosomal recessive genetic trait.


Much more information can be found on the Internet.  One link that stood out is:





Adoption STAR, Inc.

A NYS Authorized Non-Profit Adoption Agency

STAR stands for Support, Training, Advocacy and Resources

2001 Niagara Falls Boulevard, Suite 5

West Amherst , New York 14228

Office 716-691-3300

Fax    716-691-1066




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